Posted by J.L. BOSTICK at 10:47 PM
Friday, April 24, 2009
We were so excited yesterday being interviewed by KVUE news in Austin. The team that was sent to us were very enthusiastic about the procedure and offered us even more hope than we already had. The story aired at 10pm last night and you can view the story in its entirety on our website.
We also have our first few fundraisers set and ready to go. On May 2nd we will be hosting a booth at the Taylor Bloomin Festival and on May 30th there will be a Singles Picnic basket Auction at Murphy park. This event will begin at 2pm.
Thanks to everyone who has already helped us! We feel truly blessed.
All of us on KVUE
(cross post @ Hope For Miriam Blogspot)
Monday, April 20, 2009
This has been one heck of a day.
1. I heard from a reporter at KVUE news in Austin and they want to do a news interview with us about Miriam. It scares the heck out of me but we are going to do it! They are going to be here Thursday to do the interview. SCARY!
2. I heard from the city and they want to donate to us space in the Bloomin Festival. It is a local town "fair" type thing they have every year. I am trying to rack my brain about what to use it for. It is such short notice it being on the 3rd but I am sure I can figure something out.
Saturday, April 18, 2009
I heard back from the company last night. Miriam has been assigned a caseworker. She is going to need 9 stem cell treatments for a total cost of almost 40 grand! I could have fainted when I saw the cost but I am sure it would cost much more if in this country. We would need to travel to a town called Qingdao, wherever that is and stay for a little over a month! Which means NO INCOME for over a month. I am not sure how we are going to do this but the moment I heard back from them I started setting up Miriam's website. I have not slept AT ALL today.
I am going to have to figure out what all we are going to do to raise money for this. Of course I have a million ideas going through my head. Time to get to work! I have emails to send out!
Thursday, April 16, 2009
Joyce (my mother in law) called today with some very interesting news. She said she was watching the news and caught the very end of a news interview about a little girl traveling to China to have a procedure done so she would be able to see. She wasn't sure if it meant anything to Miriam but with her on the phone I searched the internet for more information. After about 20 minutes I found the news report and the information just kept coming. I was so much in shock as to what I was reading that I could do nothing but cry. I actually had to tell Joyce I would call back.
The news is that this is a REAL procedure being done for children with optic nerve underdevelopment just like Miriam! 50+ kids have had it done and they can ALL see! I cannot believe it. I just can't believe it. We have hoped , dreamed and lost hope all these years. Doctors telling us time and time again that we had no hope. But now we do!
The only problem is that the procedure is VERY expensive and we of course cannot afford it. A lot of the parents, including the one Joyce saw on the news is fund raising to get there. I guess we are going to have to do the same. I am going to go write the company and see what needs to be done.
Sunday, April 12, 2009
I know it has been a while. Life is crazy with a new baby!
We has a wonderful Easter Sunday. We actually went to church today, as odd as it is we went to MY church today. The oddest thing in the world happened yesterday, I was cleaning out my car and the missionaries came up to me. They scared the heck out of me , I nearly jumped right out of my skin! Needless to say they were shocked to find I was a member of the church.
We spoke for a bit and I went in to get Tom who also spoke with them. They invited us out to church and Tom said YES! I was so happy because I have been wanting to go back to church for some time now I just wasn't quite sure he would be willing.
The funny thing about all of this is that last week I found out a guy I knew from way back in my college/LA days lived about 10 minutes from us. I told the missionaries about him and he is in the ward we will be going to. What a small world this is? He is married with a bunch of kids now, of course, who isn't after all these years..lol
Anyway, we went to church, had a nice Easter lunch then spent some time together at the park. We got some GREAT family photos which of course I must share!